Showing posts with label Relationships. Show all posts
Showing posts with label Relationships. Show all posts

Wednesday, December 2, 2020

The Letter

Not the greatest pic of a video on my computer 😉

The Center for Brain Health made these videos of our family last Summer. These are candid reflections from our family on Younger Onset Alzheimer's.

This one with Sam and Noah is absolutely incredible ... The Letter is how I would title this one. I am so proud of my guys: Noah, Sam and Tom 💙(get your hanky while watching - really)

Sam and Noah Understanding

(4 minutes - click above)

And this is us ... My Courageous Husband is my title for this one ...

Tom and Ronda Acceptance

(3 minutes- click above)

Sunday, April 26, 2020

Our Love on Sunday Mornings

Couples who have been together for many years fall into patterns that show their love for each other. Tom and I have ours. Ours are the same and they are changing. As I type that sentence, I tear up.

On this beautiful Sunday morning, Tom brings me coffee in bed in a favorite coffee mug. He has brought me coffee for years. For those of you familiar with love languages, mine is overwhelmingly Acts of Service.
This mug means the world to me. It was a gift by my youngest niece in a difficult year.
And a new act of love has entered our world. On Sunday mornings, Tom fills his pill box independently with perhaps a few questions. Once he finishes, he brings to me to check since we are at the stage where I do monitor to make sure he stays safe. During the week, he remembers to take medications without prompting. I will check with him just to make sure but typically he does well.

Last Sunday, Tom told me he "loved this pill box" and thanked me for getting for him.  I got this new version of the pill organizer for him last Fall when I could see that his medications were not being taken correctly using the one he had. Simple things like this help keep independence longer which is incredibly important on so many levels.
This is an effective organizer for loved ones with dementia. The colors, symbols and dividers with separate lids make it easy to use.

Most of us start with romantic love and I suppose some couples maintain it for a lifetime. Many of us evolve to an enduring love that is shows abundantly in both the everyday things and the inimitable moments.

Saturday, April 25, 2020

All We Need Is Love ... Or At Least It Helps

All of this.
I belong to a Closed/Private Facebook Group "Early-onset/Young Alzheimers Female Spouses Caregiver Support Group." It is is a virtual, online Support Group. There are so many personal emotions and thoughts shared in a safe place: devastating heartbreak, joyous celebrations, comedic relief, survival techniques, complete hopelessness, utter desperation, timeless love, intense anger and and profound empathy. Our hashtag is #WeWalkThisTogether

The graphic above was posted in that Group today. Sometimes I am kinda embarrassed that Alzheimer's has brought out an approach to relationships that I could have and should have practiced without a brain disease as the driver. I do recognize that "should have" is dicey emotional ground and can lead to shame which is a spiral to negativity. I am well on my way to accomplishing most of the above with Tom. And some of those behaviors are slowly making their way into my other relationships.

This post is really about love. It is about meeting those we love where they are. It is about the brokenness that many of us harbor and figuring out how to get past it. It is about finding peace. I think #WeWalkThisTogether is what we all really need - right?

We share our very personal story because honesty pulls us together. It binds us. It shows that the human condition is there in all of us.

My sweet solace today is that Tom can write (he composed without any help!) me a love letter for my birthday:

And my love for Tom ... today I set him up outside with his laptop, pillows and covers to watch Temple-Emanu El's morning Shabbat service because I KNOW the rhythms, the sounds, the words and the prayers will ring familiar and make him happy.
I helped Tom set aside his broom and take a moment.

Listening to prayers as they are chanted in Hebrew in Live Facebook connection ...

Saturday, April 11, 2020

Letter to Youngest Son

Dear Noah,

You turn 18 today. For many of your teen years, you have been talking about this day. The day you are an adult. The day you can legally do many things. The day you are in control. You have had a vision for this day. I think your expectations are probably more accurate than either of us would have imagined and certainly for reasons we did not want.

I want to reflect on this past year leading to this milestone birthday. Your teen world has been thrown a tremendous curve ball. Your Dad has Younger Onset Alzheimer's. And you and I have changed as a result. Or maybe we have just evolved to the many levels of complex acceptance.

You probably do not notice how often you shake my norms these days. There are so many moments you caretake not only your Dad but me too. This is way more than actions; it is an instinct to think of us and our well-being.  You help smooth through the rough spots which are increasing as the disease progresses.

This care taking quality has shown strong during COVID-19. Your maturity is remarkable as you have diligently ensured we have the right supplies to sanitize, created a process for keeping the virus out of our home and maintained strict social distancing. You have lightened my worry and have taken on a household responsibility. I am grateful.

Sharing family meals is a value in our home. You have stepped up to fill this gap that surfaced with the changes in our family roles. You provide more than nourishment for our bodies. You feed our souls with your joyful and creative cooking ... and again with the care taking.

Our home is calmer in some ways. My interactions with your Dad are more gentle as we focus on what IS versus what could be. And you and I are in a different place for sure. We are kinder to each other. We have always had a complicated relationship probably rooted in being so much alike. We seem to have arrived at a place of mutual understanding and perhaps an implied commitment to reach under the surface to how we feel. We are a team as you find your way through your last couple years of high school and reach towards your dreams.

You make our home a happier place. I thank you with all my heart.

As we are celebrating in a pandemic, I sent a quick text to friends and family asking for one word for this Youngest Son. This was the result.


It is telling how many DIFFERENT words were chosen for you. You have always sought to command the world around you which has created extreme highs and lows. You definitely learn through experiences and guessing that will always be part of your being.

I am proud to be your Mom. I love you and hope that you know the world is a brighter place in these last 18 years with your light shining bright on all of us!

The Face with MASK is so appropriate!

Birthday Breakfast in Bed! 

Thanks Susan!

Sunday, March 29, 2020

HeartbreakS

I had a loss this this week. And I am so sad and maybe even too much so ... we use the word trigger allot and I am thinking I have all kinds of complicated triggers pounding through my soul.

I have to go back to college on this story. I had a pretty funky and messed up childhood so I was one of those teens who was SO ready to go to college and define life on my own terms. I loved my college years that were full of best friends, dancing, parties, baseball, pizza and Greek adventures. It was not without challenges but when you are young, figuring it all out was just part of coping and moving to the next thing.

I married one of those best friends with our best friends standing around us in the on-campus chapel. The two of us went on to graduate school and had a pretty wonderful few years but ultimately our individual brokenness could not survive as a couple. We went our separate ways 28 years ago and our paths did not cross.

Last summer, this college sweetheart and my first husband with the most beautiful smile reached out to me. He had cancer. It sounds like a cliche but he wanted to say some things to me to bridge some of the pain we experienced all those years ago when we divorced. And a few of those best friends from our magical college years rallied to be there for him. We got to spend a few afternoons with him in his home with his hilarious parents, we shared meals at local restaurants, rolled with laughter at old photos, I spent a couple hours at the park and shared some ice cream and I even spent an evening at Big Baylor.

And of course all of this coincided with my Husband being diagnosed with Younger Onset Alzheimer's.

Life can really throw some doozies at you. And I get triggered into feeling like I just can not ever do all I want to do, that I should do more, that I did not do enough. I am an idea person and a dreamer so I come up with all kinds of ways I want to experience life. I have always been a caregiver and there never seems to be enough time to care for those I love in the ways I want. I get overwhelmed with empathy across an entire spectrum: for those close to me all the way to every human injustice around the world.

And in the midst of COVID-19, my first husband dies Friday night surrounded by his family in the home he grew up. I did have a brief phone call with him Thursday morning where all that is left is "I love you." Those are only words.

And then THIS happens. I tell my Husband about the death. And my Husband whose brain just does not work the same and where our connections are different now says "I am so sorry Ronda. I know how much you loved him" and He Hugs Me. And my heart breaks in a million additional ways in that moment.

Saturday, May 12, 2018

My Mother's Day Poem 2018: HARD

The teen mother had a baby girl
It must have been hard
The young family welcomed a son
They were complete until they were not

The dead mother leaves a little girl
It was so hard
There was no more family
They are all left with lives unfulfilled

The little girl becomes woman
It was hard without a mother's love
She begot a family
The two sons encompass her heart

The woman knows loss
The hard part never really goes away
A family torn apart is familiar
She is compelled to help

This woman will mother others
It is hard
The need to is too great to evade
Too many families broken

Flawed mothers have children
They try hard to be different
But it does not always work
Children are abandoned 

The mother will foster other hearts
Hard will be defined in unimaginable ways
But the call is too loud
Maybe a heart will be less empty ...







Monday, April 30, 2018

All Children Deserve a Chance

This is Love.
Life is messy. Most of us are just trying to do the best we can.

Youngest Son
"You know I was thinking while I was driving today and it occurred to me that D has no chance."

Commuter Husband
"If things were different and D was available. I might want to adopt him. Can you believe I am saying this? He is such a great kid."

D's Family (Two Grandmothers, an Aunt and a Cousin)
D's Family walked into the CPS office today with a huge, beautiful bouquet of flowers for me. I am crying typing these words. D's family simply wants their family back together. They are grateful D is being cared for while they are dealing with judges and courts and working unfamiliar systems to get their kids back.

It is all about compassion and empathy and love. Each of us touching D's young life right now wants him to be safe and happy. And to have a chance. All children deserve a chance.

I want to be part of a society that helps pick people up when they fall; a society that protects ALL children when adults fail them and where protection is usually defined in lots of complex ways.

Sunday, May 8, 2016

Before It Is Too Late

It is Mother's Day and I am thinking of my mother whose life was cut short in 1969 at twenty-two years of age. I was four years old and my brother was sixteen months. I have pieced together a sketchy picture of who she was from photos and conversations from those who knew her. I have no conscious memory of her. A series of events starting with my mother's death and my father marrying again less than one year after her death ultimately resulted in estrangement from my father for most of my life.

Another tragic death occurred in November 2014 when my brother's wife, my sister-in-law, took her own life and ended her mental anguish. My nephew and nieces lost their mother much to soon. The sadness I feel for them is immense knowing all too well what it is like to live motherless.

This story now takes an unexpected shift in November 2014. At that time, my father, Daddy, lived in North Richland Hills, Texas, with my step-mother. They had been married for forty-four years but had no real relationship with my brother, my step-sister, me and six of their collective grandchildren.

Daddy showed up at my sister-in-law's funeral. That day, coincidentally, we ended up at the same Cracker Barrel on I-35 coming home from Waco, Texas after the funeral. Daddy bought lunch for his two children and five grandchildren. Consider the significance of this seemingly unremarkable occurrence: Daddy had not bought me a meal since I was sixteen years old in 1981.

Shortly thereafter in December 2014, I made a decision. Boundaries I had established for over twenty years with Daddy to protect my children and me were no longer needed; while crucial in years past for my own mental health, the boundaries had served their intended purpose. So I called Daddy and asked him if he wanted to stay with Oldest Son and Youngest Son while I traveled to Poland on a business trip in January 2015.  To my surprise, he said yes. Until this time, Daddy had not taken care of the boys and I could count on one hand the number of times he had seen them. All went well with this first chance at reunification.

Throughout 2015, we kept stepping forward, inching our way towards a relationship. We would do what regular families do like actually see each other and talk on the phone. Daddy went out of his way to be with us. Daddy made us a priority. This made all the difference.

Then the unimaginable happened in November 2015. A phone call from Daddy changed everything. Daddy announced he was getting divorced. After four decades of marriage, at age 70, he was finally ridding our family of the evil step-mother. My brother and I were swept into a situation we could not have predicted would ever occur; we were helping Daddy figure out what to do next. The answer was far too simple. Daddy sold his house and moved to Stephenville, Texas to be close to my brother and his kids.

Daddy is now in Stephenville for two reasons. He is there to be with my two nieces (ages 11 and 14) and nephew (a freshman at Tarlington State University) and to help his son, my brother. Daddy rented a house across the street from the girls' schools thus the girls can go to Daddy's house in the afternoons. He helps with car pools and doctor appointments and all the many things that require adult hands. My brother is a single parent raising two daughters thus any and all help is appreciated.

Interacting with Daddy is easy. He is a nice man who tries to go along with whatever we want. He is not difficult and not complicated. We cannot erase nor forget that he abandoned my brother and me for almost forty-five years, most of our life. However, we can believe in second chances and choose not the let the past define the time we have left with him. Relationships require time together or there is no authenticity and no closeness. Daddy has finally chosen to give us his time and presence. It is good for my brother and me but it is priceless for the five grandchildren who have another person to love them.

Today I think about the mothers who left this earth far too soon: my mother who Tom and the boys never met, Husband's mother whom I and the boys never met and my sister-in-law.

The first title for this post was "It Is Never Too Late." Then I wrote the last paragraph and realized it is too late after someone dies especially if they pass suddenly. That feels depressing when my intent was to send out a positive message. I have changed the title to "Before It Is Too Late." We have lost our mothers and the grandmothers of our children. But we have chosen to welcome a grandfather.

There is a message in this story. Cover the distance whether it is emotional or physical to create a relationship that may have been lost ... before it is too late.
Husband is the cutie in the overalls held by his father. Husband's mother is holding his older sister. (Husband does have a younger brother who was not born when this picture was taken.) I never met either of Husband's parents as they both passed before we met.
This is me, my parents and my brother in 1968. This is my Daddy who has re-entered our lives. 
We do not have too many photos with our family of four: Daddy, me, my mother and my brother. Fairly certain this is taken in January 1968 when my brother came home from the hospital.